November
Spotlight
The Jordyn Cook Epilepsy Fund, Inc. (JCEF) was created in 2006 to fund our mission to educate the community about epilepsy and its impact on all those affected by the disease: the individual, family and community.
The first goal of JCEF is to fulfill a $350,000 pledge to fund Mass General's "Growing Up with Epilepsy", web site. This interactive web site features the stories of eight families who deal with childhood epilepsy. The stories depict the families' struggles and success with the disease. This site is a way for everyone to learn about epilepsy, whether they are a family newly affected, have a friend struggling with the disease, or are an educator dealing with epilepsy in school. The goal is to provide clear information about childhood epilepsy, its diagnosis, and treatment and to educate visitors about the disorder's effects on learning, behavior, and family life.
The Fund is named after Jordyn Cook who was diagnosed with Epilepsy at age 3; Jordyn is now 10. She has been through 11 medications, had brain surgery, and a vagus nerve stimulator implanted in her chest. Although Jordyn has difficulty with fine motor skills, she is a formidable shot at basketball, loves to skate and practice karate and is an award-winning climber at Camp Wee-Kan-Tu, a Duxbury summer camp for children with seizure disorders.
The Mass General site can be accessed through the Jordyn Cook Epilepsy Fund, Inc. site (www.jordyncookepilepsyfund.org) where you can find recent articles about Jordyn and our fundraising efforts. |
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Caretaker
by Allen Larson, President
Cape Cod Center for Sustainability
 Every family has a caretaker, someone who pushes and prods in constructive ways the interests and ambitions of the family's members. Over the years, the term "family" has broadened from its core meaning of blood relatives and extended members related by marriage. Now, the term relates as well to people who share a common interest such as work or a mission. In the nonprofit world, examples abound of "families" that have rallied due to unforeseen and often unfortunate circumstances to turn them into fulfilling and truly beneficial undertakings.
We've focused on some of these start-up efforts in our Spotlight section. This month's focus on the Jordyn Cook Epilepsy Fund shows just how wonderfully people and organizations have rallied around a small girl's plight. It's an organizational initiative that is similar to the one started many years ago and now known far and wide as the Jimmy Fund. There are other examples as well. MORE
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All In A 'Day in the Life'
Submitted by our Readers |
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Sustainable Small Business Award
 The Cape Cod Youth Council on Sustainability is still accepting nominations for the second annual Sustainable Small Business Award! If there is a business you wish to nominate, please email your nomination to contactccycs@gmail.com. Please be sure to include the name and address of the business as well as a brief description of why it deserves this award. Also include the name, address, and phone number of yourself, the nominator. Nominations due by November 16th, 2007
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Working Hard
 Have you every worked really hard I mean really hard for some thing and then just have it taken away? That's what happened to me on October 7th at the Chicago Marathon. I spent four hard months training for my 5th marathon, hiring a coach, launching a charity running team "Pre Owned Certified Running Parts", I gave up Friday nights out only to get up Saturday mornings at 4:00 AM so that I could hit the pavement at 5:00 AM for a 20 mile run, planting water and sports drinks behind peoples hedges before they even got up to get their morning newspaper, dealing with blisters, cramps, head aches, running gear, gu, gels, body glide you name it.
Four months of planning and training, timing every mile, monitoring every food and water intake and out put- I was ready- for the race of my life! I arrive at Boston Logan Airport early to avoid security check points, only to be one of the random chosen for a search, then arriving in Chicago at the Ramada Inn- what a joke than was, the hotel lost my reservation, finally get checked in to find the suite I booked only had two beds and no other living space- the lock on the door was broke, the TV and the hair dryer did not work, the free shuttle service they provided was out of commission. I thought ok- nothing else can go wrong I'll enjoy the marathon. I get up at 5:00 AM get ready to run the 30th Anniversary of the Chicago Marathon to have it called off due to extreme heat half way through the marathon- you have to be kidding me. I get back to the hotel settle in check out the next day- my flight going home was delayed and the bus I took from Logan back to the Cape was running late due to traffic but I made it back home safe and sound.
All and all I had a great time!
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Cape Cod Life Philanthropy Edition
It includes:
* 5 DONORS to inspire you
* 10 CHARITIES shining with success
* 10 LEADERS who model greatness
* NEW FEATURE: Volunteer Spotlight
Get the magazine by calling 877-733-6438 or online at:http://www.capecodlife.com/philanthropy/index.php.
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Send Us Your Stuff!
 The newsletter editors are looking to share funny, warm, or touching stories from nonprofits and volunteers from their daily experiences from the office, board and committee meetings, or out in the field.
We'll make a $25 donation for any stories or photographs that we publish. MORE
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